Darkness Until Dawn

It doesn't even matter that much which dx they use, as long as I have what I need. Though I still think cPTSD/DID, adhd, and autism are the most accurate. Tomorrow I'll try to write a funny story.

All I really need is a quiet life making my own choices. That's it. That's really what I have. I have problems, but I make them work. 

In a way I feel like my life started 3 years ago when I got off clozaril and the magic maker quit. Unfortunately, I do get to have an opinion and make decisions. A Lotta people dont like that. Take that one fella in the ER, a male nurse. It was a beautiful moment we shared. He took the time to snarl at me how much of a disappointment I was to my father. So sweet. That was shortly after he violently shoved a catheter up my urethra. Some of these of these moments were Kodak.  Anyways, the world is so different off clozaril. I read people better, and I think more coherently. So long as I follow the law, I get to make choices, like which provider and what medication. I'm becoming more and more aware of the disconnect. They miss bipolar and clozastill. They dont like the dx. They dont like the provider. It's unfortunate.   Anyways. It makes more sense now. Everything, really. I just dont like people messing with my health care and other people dont believe in my provider. As l...

    I'm taking the time to remind family members and healthcare providers of my legal rights. While I'm still a living, breathing, US citizen I still have some of those rights. Sometimes people come up with excuses to violate my rights repeatedly.      There are several laws that apply to healthcare. I went to the Patient Bill of Rights. Timely access to medical care . Be treated with dignity and respect by each MED health unit staff member. Medical care that is free from discrimination on the basis of age, sex, race, ethnicity, national origin, language, disease, disability , or religion. Easy-to-understand information about your diagnosis and treatment options from your MED medical service provider. Ask your MED medical service provider questions so that you can make informed decisions about your health. Request the professional qualifications of the primary MED medical service provider rendering care. Communicate confidentially with your MED medical service...

I'm not sure if I don't say what I need to say or people simply don't listen. I'm trying to be more deliberate with my communication. People that don't listen, I don't spend time with. I now have a job that requires minimal talking so I dont have to stress my voice for no result (VNS implant). I'm saving my communication for when it has impact. For the most important things. Without the medication, I communicate mostly by the mychart (text) messages, which is something Prichards was completely unwilling to do. It's so much easier. Plus, it creates a paper trail, so no one can BS or do the run around. I talk to five people on a regular basis. Well six now. The PA, two counseling people, my sister, and 2 friends. Cutting down on social contacts keeps my head clearer. Maybe I'm hypersensitive, but I'm finding people much more difficult. I'm trying to be much more careful. Psychological walls, gates, checkpoints. It's not only harder to focus...

Boundaries in healthcare can be very important. Without proper boundaries, it's easy to hijack or sabotage someone's well-being. To run them over, run over thier providers, to have one family member running another family members entire life byproxy. This breaks relationships, breaks wellbeing, and wastes resources. Eventually the hospital will have to choose whether to do its job or to help my family control me the way Prichards did. They tried the helping to control route. My counselor is the roadblock to that plan. So now either the hospital is doing wait and see like my family or they are finally getting the picture. It's a Healthcare cold war. Everyone wants a piece of the action, it seems. I've put up my own walls.