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Walls
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I'm not sure if I don't say what I need to say or people simply don't listen. I'm trying to be more deliberate with my communication. People that don't listen, I don't spend time with. I now have a job that requires minimal talking so I dont have to stress my voice for no result (VNS implant). I'm saving my communication for when it has impact. For the most important things. Without the medication, I communicate mostly by the mychart (text) messages, which is something Prichards was completely unwilling to do. It's so much easier. Plus, it creates a paper trail, so no one can BS or do the run around. I talk to five people on a regular basis. Well six now. The PA, two counseling people, my sister, and 2 friends. Cutting down on social contacts keeps my head clearer. Maybe I'm hypersensitive, but I'm finding people much more difficult. I'm trying to be much more careful. Psychological walls, gates, checkpoints. It's not only harder to focus...
Healthcare Chess
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Boundaries in healthcare can be very important. Without proper boundaries, it's easy to hijack or sabotage someone's well-being. To run them over, run over thier providers, to have one family member running another family members entire life byproxy. This breaks relationships, breaks wellbeing, and wastes resources. Eventually the hospital will have to choose whether to do its job or to help my family control me the way Prichards did. They tried the helping to control route. My counselor is the roadblock to that plan. So now either the hospital is doing wait and see like my family or they are finally getting the picture. It's a Healthcare cold war. Everyone wants a piece of the action, it seems. I've put up my own walls.
Pruning
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I'm closing down everything I can no longer maintain to focus on my deliveries, health and my writing. Only the essentials now. I'm still dealing with a lot of memories and ptsd. it doesn't help that people keep doubling down on sabotaging and undermining me. But I'm closing doors as much as I possibly can. Maybe some people will finally fuck off. Maybe my counselor will have to work overtime. Who knows. She gets paid by the hour, just like anyone else. So long as she is standing, the law is on MY side. So everyone (you know who you are), Fuck off. Thank you.
Responsibility
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There are times in life that a person needs to walk away. Sometimes you can explain, sometimes you simply have to move away as quickly as you possibly can while you still can. Further, sometimes life involves a lot of one way communication. That's not generally a good thing, but it happens. Usually, one way communication is a good sign that it's time to suspend communication or end it permanently. Sometimes you don't get a chance to say goodbye, much less to explain. I've put all my communications on hold pretty much since march. Damage control mode. I don't know if or when some communications will resume. I'm focusing on what's real. Writing. Working. Maintaining my health. Maintaining space. Slowing down the BS train. I'm hoping that eventually some communications resume. Others, I'd rather let go. There are many things I can take responsibility for. I can take responsibility for being funny, intelligent, kind, good a...
F.U.B.A.R.
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One of the first things I did when I got out of the hospital was broadcast this website far and wide. I sent it to hospitals. I sent it to friends (including Health Dept). I sent it to all my providers. I sent it everywhere. There had been such a colossal and utter lack of listening that the only thing I knew for sure is that if I was going down, everyone was going to know why. Even if they chose to ignore the truth, they would at least hear it. There's been forced medication, threats, manipulation, backstabbing, sabotage, medication carousels, diagnostic BS, and never ending chaos. When there is no listening, life is merely a long process of screaming into the wind, with the only result being that you hear your own echoes now and then. Then they wonder why my counselor insisted on keeping going. It was because she had been in the storm with me, and knew the insanity that was my life first hand. She knew it all. She knew why I had to ...