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Monday, July 14, 2025
Weird Ideas Part V
I'm hoping that my feedback filters in little by little to the upstate healthcare community. I think it's important to understand the dangers of Bad Psychiatry and Medicalized Perfectionism. Not every little imperfection of a living organism can be corrected. Sometimes we simply are imperfect beings. Imperfect beings that will never be perfect.
We are imperfect beings that get over diagnosed, overanalyzed, over criticized for our imperfections and this leads to things like thoughts of harm to self or others, agitation, PTSD, and broken trust. Forced medication is not ok. Goading is not ok. Threats are not ok. Lying and playing games is not ok. Slapping on a new dx and new drugs and blaming the patient is not helpful. Remember the Hippocratic oath, because, contrary to popular belief, I can and will always find a more ethical provider somewhere else and word does spread. Even if I don't file a complaint, it spreads.
And you can blame yourselves for that.
Gender Conformity and Ableism
I think two forces that have had major destructive impacts on my life are Gender Conformity and Ableism. Ableism is a big part of mental health stigma, but they are not the same.
Ableism is the belief that people who are nuerotypical (don't have things like autism, Down's Syndrome, retardation, mental illness, etc) and physically normal (not in wheelchairs, etc), are superior to those who are different. This goes back to Asperger, Nazism, and medicalized perfection. See the Nazis wanted perfect people too, all blue and blonde haired and strong and perfect. Only America takes it in a different direction. Instead of overtly trying to genetically perfect the population, we use other means. We stigmatize people who are different ("We're going to have to ship him out of state", jail threats, put downs, denial of accommodations) we use means to "thin out the herd".
We're not that much different from Nazis in some ways. The Nazis performed human experimentation to try to find ways to perfect humans. They gave amphetamines to soldiers, performed unethical medical experiments on Jews, they had a vision. I try to tolerate people who are different and find things to appreciate in them. Because I know what it's like to be medically perfected and examined from every angle to find faults.
Gender conformity is slightly different in that it's about the idea that men and women have distinctly different roles in society due to their biological differences. Some common ideas are that women should not work and that men are supposed to be strong and silent and all about their careers. It's very black and white thinking applied to genetic differences. Like Ableism, it fails to take into the account that humans are imperfect living organisms that do not conform to schematics. We were not designed, we were formed or created as imperfect beings to live in harmony, not to destroy one another.
Post ER Visit
It feels good to be getting Pristiq back in my system. I was really relieved by the difference in the ER staff yesterday. They were much more receptive.
I think I need to reduce my mychart messages more. I get frustrated with the doctors and some of the staff. I'm trying to increase my trust and improve my regulation. I may have called the doctors something like jealous incompetent idiots or something like that and I believe I told them that some people should rot in hell. Maybe a bit abrasive. Maybe I'm oversensitive. I'm trying to take this in a more positive direction. Because I believe that rather than fantasizing about guns and explosives that I should focus on trying to treat them the way I want to be treated. So that's what I tried to do. I was actually there for about 4-5 hours, not 2. I lose track of time.
So now I just need the rest of the pristiq. And to stay positive. Be me. The best me I can be.
Sunday, July 13, 2025
Problems
What I do have a problem with (other then fancy diagnoses) is anger, trauma, poverty, and lack of mental presence. I'm very spacey. I don't expect people to give a damn, but I do have to deal with it, whether you think I'm faking or not. The autism and adhd are the more complex underlying problems. It's not that hard to understand. All you need is the desire to truly understand, and it's following basic sentences. A high schooler can do it.
The starting point is autism. ADHD, most people understand already. Then slap on some trauma dissociation, and bingo, you have someone who is intelligent, different, and not very present. Comes from decades of repeated trauma. Ods, comas, severe depression, hospitalizations, these all qualify as trauma. No cure. It's fairly permanent. Pretty much all of it. Permanent disability. I can still do things, but the emotional dysregulation, spaceiness and communication issues will make full time work and many major endeavors unrealistic.
THC
Dedication
I keep getting distracted, but if I'm trying to get my days back down to a system, just a different system. A system focused around accountec, writing, and health. As I keep saying getting too old for stretching myself thin, for chaos. I can't afford distractions.
Trust Issues
Trust issues refer to the difficulties a person experiences in believing in the reliability, honesty, and integrity of others, often stemming from past negative experiences. These issues can manifest as fear of betrayal, abandonment, or manipulation, and they can significantly impact relationships, leading to anxiety, suspicion, and difficulty forming close connections.
Signs of Trust Issues:
Fear of betrayal or abandonment:
Individuals with trust issues may anticipate being hurt or mistreated, leading them to be guarded and hesitant to open up emotionally.
Difficulty forming close relationships:
They may struggle to trust others, making it hard to form and maintain intimate friendships or romantic relationships.
Suspiciousness and skepticism:
They may constantly question others' intentions and motives, even when there's no logical reason to do so.
Anxiety and insecurity:
Trust issues can lead to heightened anxiety, worry, and a general sense of unease in social situations.
Avoidance and withdrawal:
They may avoid social situations or relationships altogether to minimize potential pain or disappointment.
Difficulty forgiving:
Small slights or misunderstandings may be difficult to forgive, potentially causing further strain on relationships.
Low self-esteem:
Trust issues can sometimes be linked to low self-esteem, as individuals may not believe they are worthy of trust or love.
Causes of Trust Issues:
Past experiences of betrayal, abandonment, or trauma:
These can include experiences like infidelity, abuse, or neglect.
Adverse childhood experiences:
Difficult or traumatic childhoods can significantly impact a person's ability to trust others.
Mental health conditions:
Anxiety disorders, depression, and other mental health conditions can contribute to trust issues.
Insecure attachment styles:
Individuals with avoidant or anxious attachment styles may be more prone to trust issues.
Gaslighting or narcissistic abuse:
These experiences can erode a person's sense of self and make it difficult to trust their own perceptions, let alone the perceptions of others.
How to Overcome Trust Issues:
Seek professional help: Therapy or counseling can help individuals process past traumas, develop healthy coping mechanisms, and learn to build trust.
Work on self-esteem and self-compassion: Building self-esteem can make it easier to believe in oneself and feel worthy of trust from others.
Practice mindfulness and self-awareness: Paying attention to thoughts, feelings, and behaviors can help individuals identify triggers and patterns related to trust issues.
Communicate openly and honestly: Communicating needs and boundaries can help build trust in relationships.
Start small and build trust gradually: Rebuilding trust takes time and effort, so it's important to start with small, manageable steps and build up from there.
Forgive yourself and others: Forgiveness is essential for moving forward and letting go of past hurts.
Be patient and persistent: Overcoming trust issues is a journey, and it's important to be patient with oneself and celebrate small victories.
Damaged Trust
Angels of Mercy
Acrylic paints
I finally got some actual acrylic paint, not just markers. I'm working on my first amateurpiece. Impression of a stormy sky. Next, I'm going to try to knock out a couple of poems and some of the messenger. The meds are getting back into my system so I'm getting some relief.
Spidey went down to di ER to get checked out. Saw 3 docs. The first ER doc just talked to me. Den di doc Spidey saw in march did a very basic exam. Darcy. Den di head doc. They got me my some of my meds called in. The nursing staff seemed less alarmed. Didn't mention Elle's name. Darcy recognized me. She was quiet.
I told the 1st er doc about how I was scared of hospitals. She said they would take good care. I told the head doc about the trust issues and the traumatic march hospitalization that started right there. I told a patient observer about how the hospital used to seem like family. All I said to Darcy was that I recognized her. She said yeah, I remember I took care of you.
I feel better about this experience because they really heard me and were able to help.
I do the things I did before
I write stories more and more
And then they say where's that crazy guy
You don't get work a lot and joke no more
I don't see me anymore
Since 2020 came
The plans I make don't have me in them
'Cause dreams come swimming into view
And I'm hanging around the ward like I always used to do
The words they use so lightly
Are oh so far from view
I only know because I, carry me around in the background
I'm in the background
Words they come and memories all repeat
Pain inside like nothing I'd care to meet
And I would never lie to you,
No, I would never lie to you,
I never thought I'd feel so very through
But it feels true...
The plans I make still have you in them
'Cause dreams come swimming into view
And I'm hanging in the ward like I always used to do
The words they use so lightly seem so far it's true
I only know because I, carry me around in the background
I'm in the background
I only know but I am, way,
I'm way in the background.
Dear Leaves,
I hope that I'm doing this right. I've had headaches and nausea, anxiety, trouble sleeping, lack of energy, lack of focus, lack of medication, lots of frustration... this has been exhausting. Trust is so hard sometimes. So very hard. My perception is changing. I hope I'll like myself when the dust settles. Sometimes I worry that I might say or do something I will regret. I feel very, very afraid to talk to people. It seems like I never know what to say. Sometimes conversations just stop, and I never figure out what went wrong. I can't stay this way forever. This earthly purgatory is running me into the ground. Sometimes death seems inevitable. It seems just weeks or days away. I feel confused much more often than clear, but that's nothing new. I need to find a better way.
Ashes
Dear God,
How's Peter doing? Think he will recognize me? Have I done enough good? Am I reaching anyone? Being kind is challenging sometimes. I've gotten lost again. It's become a habit. There's so many people I miss. Some are long gone. Others are far. Still others are on some sortof vacation, whether temporary or permanent.
I need some guidance here. Don't let me walk blindly. I'm afraid of what I might hit.
Ashes
Saturday, July 12, 2025
Regrets
I regret not getting the right help sooner. I regret going to mip again. I regret not being more focused on something I was truly passionate about. I regret not communicating better. I regret not focusing on resolving this much much sooner. I feel like it didn’t have to get this bad. I have many good qualities, how did it get this bad?
I'm getting caught up in the negativity and recriminations. But I'm trying to have compassion. It didn't used to be like this. MIP used to be my safe zone. I'm trying to look beyond the disagreement over my care. I just need to make it until the pristiq refill comes in. I'll try mycharting memorial again. I know ive been stable for long periods before. I know i can do it again. I feel like I have too much time alone but im not communicating well and I don't know how that changes.
Humility
I saw a post on a social media site about humility. It really rang true with me, because regardless of what my real diagnosis is or isn't, it's widely agreed that I have one. The post said that it's important to remain humble, because at any point you could get a dx that could change your entire life. I'm told I'll never have a normal life, regardless of what my dx is or isn't. I count myself lucky to have known all the people I have known. I really do. I've met some great people in my lifetime. I hope and pray that I have more good times ahead of me. I have trouble keeping the faith, but regardless I hope that I can be a light, even when I struggle to see that light.
Past Reflections
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The full strength of the storm had set itself against me and I had prevailed. In all honesty, it was not even a proper mountain, merely a gl...
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The voice on the phone was familiar to him and still talking, but he had stopped listening several minutes ago. She obviously didn't...
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For Ashes, life was always about the spark. The hard part was avoiding a wild fire. With the spark, everything was meaningless. But after a ...
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I have lost my way before, it's true. I have retreated into the distance, pulling back from the world in pursuit of shelter from the sto...
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I can honestly say I never understood the world. I was naïve. The people around me told me I had to change, to be like them. I wanted to, bu...








